A Face For Picasso: Coming of Age with Crouzon Syndrome

Ariel and her twin sister Zan are born with a rare syndrome that causes the bones of the head to fuse prematurely and the twins go through many surgeries to “correct” or “fix” their appearance. Ariel recounts facing bullying, dealing with a school system that doesn’t support her learning, questioning the meaning of beauty and symmetry, and developing body dysmorphia and an eating disorder as she wrestles with these issues. This award-winning memoir explores society’s view of beauty, identity, how we treat others and ourselves, and can help students develop empathy and respect for others. Suitable for small group or individual reading. Social considerations noted.
Henley, Ariel
Primary Identifier
Arts Education